{"id":4889,"date":"2024-09-19T10:01:30","date_gmt":"2024-09-19T08:01:30","guid":{"rendered":"https:\/\/community.ehc.eu\/focus-area\/la-maladie-de-von-willebrand-mvw\/"},"modified":"2025-12-18T12:25:10","modified_gmt":"2025-12-18T11:25:10","slug":"la-maladie-de-von-willebrand-mvw","status":"publish","type":"focus-area","link":"https:\/\/community.ehc.eu\/fr\/focus-area\/la-maladie-de-von-willebrand-mvw\/","title":{"rendered":"La maladie de von Willebrand (MVW)"},"content":{"rendered":"<!-- hero -->    <section  class=\"subpage-hero text-white bg-blanc\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"relative z-10\">\n\t\t\t\t<div class=\"pt-16 lg:pt-24 pb-24 lg:pb-32\">\n\t\t\t\t\t<div class=\"row justify-between gap-10 lg:gap-0 mt-10 text-center lg:text-left\">\n\t\t\t\t\t\t<div class=\"w-full lg:w-5\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h2 w-full\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t\t<p class=\"text-[115%]\">La maladie de von Willebrand (MVW)<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"w-full lg:w-5\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content lg:text-[120%] mt-14 lg:mt-20\" data-scroll data-fade-up data-delay-02>\n\t\t\t\t\t\t\t\t\t<p>\u00ab\u00a0Ensemble, nous pouvons faire en sorte que chaque personne atteinte de la maladie de von Willebrand, ou vivant avec une personne atteinte de la maladie de von Willebrand, soit soutenue pour vivre longtemps, heureuse et en bonne sant\u00e9.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t<\/section>\n<!-- overview --><section  class=\"s-overlay-img s-padding bg-rouge\">\n\t<div class=\"container\">\n\t\t<div class=\"row w-full lg:flex-row justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t\t<div class=\"w-full lg:w-4\/12 min-h-full\">\n\t\t\t\t\t<div class=\"w-full lg:w-[36vw] 2xl:w-[40vw] h-[28vmax] lg:h-[30vmax] min-h-full relative overflow-hidden radius-20\">\n\t\t\t\t\t\t<figure class=\"absolute top-0 left-0 size-full radius-20\" data-img-animation>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"w-full lg:w-8\/12 lg:py-10\">\n\t\t\t\t<div class=\"bg-white min-h-full py-12 px-10 lg:py-24 lg:pl-24 xl:pl-44 relative radius-20 z-10\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"subtitle\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t<p>Bas\u00e9 sur la maladie<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h4 mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t<p>\u00c0 propos de la maladie de von Willebrand  <\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t<p><b>Le comit\u00e9 sur la maladie de von Willebrand (MVW)<\/b><span style=\"font-weight: 400;\">  a \u00e9t\u00e9 cr\u00e9\u00e9 en tant que groupe de travail en 2020 pour diriger la \u00ab\u00a0plateforme EHC VWD pour l&rsquo;Europe\u00a0\u00bb. Cette plateforme promeut la formation d&rsquo;une communaut\u00e9 europ\u00e9enne de personnes atteintes de la maladie de von Willebrand (PwVWD) leur permettant de trouver un soutien et une \u00ab\u00a0identit\u00e9\u00a0\u00bb tout en promouvant, construisant et entretenant un r\u00e9seau de d\u00e9fenseurs europ\u00e9ens de la maladie de von Willebrand. Le groupe de travail a \u00e9t\u00e9 transform\u00e9 en comit\u00e9 en 2023, ce qui refl\u00e8te son \u00e9volution et son d\u00e9veloppement au cours des trois derni\u00e8res ann\u00e9es. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">  Le Comit\u00e9 a pour objectif d&rsquo;accro\u00eetre et d&rsquo;am\u00e9liorer les options de diagnostic et de traitement au niveau national et de permettre aux d\u00e9fenseurs de la maladie de von Willebrand de travailler au niveau europ\u00e9en et avec d&rsquo;autres partenaires europ\u00e9ens en vue d&rsquo;am\u00e9liorer l&rsquo;acc\u00e8s au traitement et aux soins pour toutes les personnes atteintes de la maladie de von Willebrand.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Pour contacter le comit\u00e9 EHC VWD : <\/span><a href=\"mailto:vwd@ehc.eu\"><span style=\"font-weight: 400;\">vwd@ehc.eu<\/span><\/a> <span style=\"font-weight: 400;\">ou contactez <a class=\"c-link c-link--focus-visible\" href=\"https:\/\/www.ehc.eu\/our-staff\/\" target=\"_blank\" rel=\"noopener noreferrer\" data-stringify-link=\"https:\/\/www.ehc.eu\/our-staff\/\" data-sk=\"tooltip_parent\">Zita Gacser<\/a>, responsable de la communaut\u00e9 et des projets. Contactez-nous \u00e9galement si vous souhaitez rejoindre notre groupe de soutien WhatsApp (ouvert uniquement aux patients atteints de la maladie de von Willebrand).   <\/span><\/p>\n<p><span style=\"font-weight: 400;\">#VWDunited #VWDtogethere #beVWDaware<\/span><\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/section><!-- team --><section  class=\"s-members-carousel s-padding-medium\">\n\t<div class=\"container\">\n\t\t<div class=\"row relative z-10\">\n\t\t\t\t\t\t\t<div class=\"w-full row justify-between text-center lg:text-left\">\n\t\t\t\t\t<div class=\"w-full lg:w-8\/12\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h2\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<p>Membres du comit\u00e9 VWD<\/p>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<div class=\"w-full lg:w-auto flex justify-center lg:justify-end items-center gap-10 mt-12 lg:mt-0\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-nav swiper-nav-dark row gap-5 !flex-nowrap\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t<div class=\"prev cursor-pointer\">\n\t\t\t\t\t\t\t\t\t<svg decoding=\"async\">\n\t\t\t\t\t\t\t\t\t\t<use xlink:href=\"#i-arrow-left\"><\/use>\n\t\t\t\t\t\t\t\t\t<\/svg>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t<div class=\"next cursor-pointer\">\n\t\t\t\t\t\t\t\t\t<svg decoding=\"async\">\n\t\t\t\t\t\t\t\t\t\t<use xlink:href=\"#i-arrow-right\"><\/use>\n\t\t\t\t\t\t\t\t\t<\/svg>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<div class=\"w-full mt-12 lg:mt-20\" data-scroll data-fade-up>\n\t\t\t\t\t<div class=\"members-carousel w-full\">\n\t\t\t\t\t\t<div class=\"swiper overflow-visible\">\n\t\t\t\t\t\t\t<div class=\"swiper-wrapper\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"card-with-image group\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex flex-col justify-end w-full\">\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"top radius-20\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex relative z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"subtitle text-dark bg-white\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>OMN DU ROYAUME-UNI<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"bg\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img width=\"854\" height=\"1280\" src=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/photo_2024-10-16_16-36-48-e1729173162625.jpg\" class=\"attachment-full size-full\" alt=\"\" decoding=\"async\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"caption w-full mt-12\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h5\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Joanne Traunter<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>  Copr\u00e9sident de la commission<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"card-with-image group\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex flex-col justify-end w-full\">\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"top radius-20\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex relative z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"subtitle text-dark bg-white\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>ONM autrichien<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"bg\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img width=\"928\" height=\"1046\" src=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/Julia.jpg\" class=\"attachment-full size-full\" alt=\"\" decoding=\"async\" loading=\"lazy\" srcset=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/Julia.jpg 928w, https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/Julia-266x300.jpg 266w, https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/Julia-908x1024.jpg 908w, https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/Julia-768x866.jpg 768w\" sizes=\"auto, (max-width: 928px) 100vw, 928px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"caption w-full mt-12\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h5\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Julia Rauscher  <\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Copr\u00e9sident de la commission<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"card-with-image group\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex flex-col justify-end w-full\">\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"top radius-20\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex relative z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"subtitle text-dark bg-white\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>OMN n\u00e9erlandaise<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"bg\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"caption w-full mt-12\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h5\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Cathy Verbraeken<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Membre de la commission<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"card-with-image group\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex flex-col justify-end w-full\">\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"top radius-20\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex relative z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"subtitle text-dark bg-white\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>OMN turc<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"bg\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img width=\"923\" height=\"1600\" src=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/WhatsApp-Image-2024-10-16-at-14.23.24-e1729173370826.jpeg\" class=\"attachment-full size-full\" alt=\"\" decoding=\"async\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"caption w-full mt-12\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h5\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Ba\u015fak Ko\u00e7 \u015eenol<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Membre de la commission<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"card-with-image group\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex flex-col justify-end w-full\">\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"top radius-20\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex relative z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"subtitle text-dark bg-white\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>OMN allemand<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"bg\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img width=\"912\" height=\"1295\" src=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/image0.jpeg\" class=\"attachment-full size-full\" alt=\"\" decoding=\"async\" loading=\"lazy\" srcset=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/image0.jpeg 912w, https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/image0-211x300.jpeg 211w, https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/image0-721x1024.jpeg 721w, https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/image0-768x1091.jpeg 768w\" sizes=\"auto, (max-width: 912px) 100vw, 912px\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"caption w-full mt-12\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h5\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Lena Steinbrecher<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Membre de la commission<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"swiper-slide\">\n\t\t\t\t\t\t\t\t\t\t<div class=\"card-with-image group\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex flex-col justify-end w-full\">\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"top radius-20\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"flex relative z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"subtitle text-dark bg-white\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>OMN espagnol<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<figure class=\"bg\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<img width=\"854\" height=\"1280\" src=\"https:\/\/community.ehc.eu\/wp-content\/uploads\/2024\/09\/photo_2024-10-16_16-36-52-e1729089647564.jpg\" class=\"attachment-full size-full\" alt=\"\" decoding=\"async\" loading=\"lazy\" \/>\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/figure>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"caption w-full mt-12\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h5\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Laura Quintas Lorenzo<\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<p>Liaison avec le comit\u00e9 de pilotage EHC  <\/p>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t<\/div>\n<\/section><!-- overview --><section  class=\"s-overlay-img s-padding bg-rouge\">\n\t<div class=\"container\">\n\t\t<div class=\"row w-full lg:flex-row justify-between text-center lg:text-left gap-14 lg:gap-0 relative z-10\">\n\t\t\t\t\t\t<div class=\"w-full lg:py-10\">\n\t\t\t\t<div class=\"bg-white min-h-full py-12 px-10 lg:py-24 lg:pl-24 xl:pl-44 relative radius-20 z-10\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h4 mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t<p>\u00ab\u00a0Programme d&rsquo;\u00e9ducation sur la maladie de von Willebrand : Programme \u00e9ducatif sur la maladie de von Willebrand<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content mt-8\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t<p>\u00c0 l&rsquo;occasion de la Journ\u00e9e europ\u00e9enne de sensibilisation \u00e0 la maladie de von Willebrand 2025, l&rsquo;EHC a publi\u00e9 une s\u00e9rie de 10 vid\u00e9os qui font partie du programme \u00e9ducatif en ligne \u00ab\u00a0Topic on Focus : VWD\u00a0\u00bb organis\u00e9 avec <strong>ERN-EuroBloodNet<\/strong>, qui comprend des webinaires dirig\u00e9s par des experts et couvrant des aspects cl\u00e9s de la maladie de von Willebrand. Ces vid\u00e9os pr\u00e9sentent des points de vue m\u00e9dicaux, des exp\u00e9riences personnelles et des strat\u00e9gies pratiques pour aider les patients et les soignants \u00e0 vivre avec cette maladie. <\/p>\n<p>Les 10 premiers webinaires sont disponibles sur la <strong> cha\u00eene YouTube @EHCTVChannel<\/strong> et sont destin\u00e9s aux patients, aux soignants, aux professionnels de la sant\u00e9 et \u00e0 toute personne d\u00e9sireuse d&rsquo;en savoir plus sur la maladie de von Willebrand. Parmi ces webinaires, plusieurs \u00e9pisodes tr\u00e8s int\u00e9ressants portent sur les femmes atteintes de la maladie de von Willebrand. <\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t                        <div class=\"bottom mt-12\" data-scroll data-fade-up>\n                            <a href=\"https:\/\/youtube.com\/playlist?list=PL-oiIvBt-bQf83yVb2RY3IuwBi2A5h43s&#038;si=h5ZQUA13Y7mq2gmU\" target=\"_blank\" class=\"btn with-icon\">\n                                <span>Regardez les webinaires EHC &#8211; ERN-EuroBloodNet<\/span>\n                            <\/a>\n                        <\/div>\n                    \t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/section><!-- recent-events --><!-- materials --><section  class=\"s-materials s-padding bg-gray-extraLight\">\n\t<div class=\"container\">\n\t\t<div class=\"row w-full justify-between gap-14 lg:gap-0 relative z-10\">\n\t\t\t<div class=\"w-full lg:w-7\/12 text-center lg:text-left\">\n\t\t\t\t\t\t\t\t\t<div class=\"title h2\" data-scroll data-fade-up>\n\t\t\t\t\t\t<p>Mat\u00e9riaux<\/p>\n\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t<\/div>\n\t\t\t<form class=\"w-full lg:w-4\/12 row justify-end items-center gap-10 *:min-w-[280px] js-materials-filter\">\n\t\t\t\t<div class=\"w-full\" data-scroll data-fade-up>\n\t\t\t\t\t<input type=\"hidden\" name=\"featured\" value=\"2879,994,1013,1014,1015,1016,1017,1018,1019,1020\">\n\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t<div class=\"w-full\" data-scroll data-fade-up>\n\t\t\t\t\t<div class=\"form-group select cursor-pointer\">\n\t\t\t\t\t\t<input type=\"search\" class=\"form-control form-control-color search-field !mt-0\" name=\"search\" placeholder=\"Search by Keyword\">\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/form>\n\t\t\t<div class=\"w-full js-materials\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t\t<div class=\"w-full s-margin s-padding text-center\">\n\t<div class=\"title h2 text-50\">\n\t\t<p>Materials not found<\/p>\n\t<\/div>\n<\/div>\t\t\t\t\t\t\t<\/div>\n\t\t<\/div>\n\t<\/div>\n<\/section>\n","protected":false},"excerpt":{"rendered":"<p>La maladie de von Willebrand (MVW) est le trouble de la coagulation le plus courant, touchant jusqu&rsquo;\u00e0 1 % de la population g\u00e9n\u00e9rale. D\u00e9couvrez ici les projets et le mat\u00e9riel relatifs \u00e0 la maladie de von Willebrand. <\/p>\n","protected":false},"featured_media":697,"template":"","meta":{"_acf_changed":false,"footnotes":""},"focus-area_cat":[137],"class_list":["post-4889","focus-area","type-focus-area","status-publish","has-post-thumbnail","hentry","focus-area_cat-base-sur-la-maladie"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/focus-area\/4889","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/focus-area"}],"about":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/types\/focus-area"}],"version-history":[{"count":1,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/focus-area\/4889\/revisions"}],"predecessor-version":[{"id":4890,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/focus-area\/4889\/revisions\/4890"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/media\/697"}],"wp:attachment":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/media?parent=4889"}],"wp:term":[{"taxonomy":"focus-area_cat","embeddable":true,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/focus-area_cat?post=4889"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}