{"id":4993,"date":"2024-09-23T19:36:45","date_gmt":"2024-09-23T17:36:45","guid":{"rendered":"https:\/\/community.ehc.eu\/campagne-thisway\/"},"modified":"2026-04-14T16:39:27","modified_gmt":"2026-04-14T14:39:27","slug":"campagne-thisway","status":"publish","type":"page","link":"https:\/\/community.ehc.eu\/fr\/campagne-thisway\/","title":{"rendered":"Campagne #ThisWay"},"content":{"rendered":"<!-- hero -->    <section  class=\"subpage-hero text-white bg-bleu-lumi\u00e8reSemi\">\n\t\t<div class=\"container\">\n\t\t\t<div class=\"relative z-10\">\n\t\t\t\t<div class=\"pt-16 lg:pt-24 pb-24 lg:pb-32\">\n\t\t\t\t\t<div class=\"row justify-between gap-10 lg:gap-0 mt-10 text-center lg:text-left\">\n\t\t\t\t\t\t<div class=\"w-full lg:w-5\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h2 w-full\" data-scroll data-fade-up>\n\t\t\t\t\t\t\t\t\t<p class=\"text-[115%]\">#ThisWay\n <\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"w-full lg:w-5\/12 lg:self-center\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<div class=\"content lg:text-[120%] mt-14 lg:mt-20\" data-scroll data-fade-up data-delay-02>\n\t\t\t\t\t\t\t\t\t<p>Il ne s&rsquo;agit pas de dire \u00ab\u00a0je dois faire de l&rsquo;exercice\u00a0\u00bb, mais \u00ab\u00a0je dois apprendre \u00e0 aimer l&rsquo;exercice et \u00e0 trouver ce qui me convient\u00a0\u00bb.<\/p>\n\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t<\/div>\n\t\t<\/div>\n\t\t\t\t\t<figure class=\"absolute size-[82.8rem] bottom-[-30%] left-[-10%] image-contain opacity-40\" data-parallax>\n\t\t\t\t<img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/community.ehc.eu\/wp-content\/themes\/cbd\/img\/content-logo-colorfull.svg\" alt=\"content-logo-colorfull\">\n\t\t\t<\/figure>\n\t\t\t<\/section>\n<!-- content --><section  class=\"sidebar-content pt-32 lg:pt-56 pb-20 lg:pb-32 z-20\">\n\t<div class=\"container\">\n\t\t<div class=\"relative w-full sidebar-content-grid grid grid-cols-1 lg:grid-cols-[max-content_minmax(0,_1fr)] gap-x-24 gap-y-5 lg:gap-y-24 pt-20 lg:pt-32 z-10\">\n\t\t\t\t\t\t\t<div>\n\t\t\t\t\t<div class=\"article-nav xl:w-[40rem] 2xl:w-[48rem] max-w-full p-12 lg:p-24 radius-20 bg-red text-white\">\n\t\t\t\t\t\t<div class=\"h4 text-30 font-bold !justify-start\">\n\t\t\t\t\t\t\t<p>Quick Links<\/p>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t<div class=\"news-sidebar-menu\">\n\t\t\t\t\t\t\t<ul class=\"lg:text-[110%] cursor-pointer\">\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<li>T\u00e9moignages de patients<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<li>D\u00e9fis en mati\u00e8re d&rsquo;activit\u00e9 physique<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<li>Subventions pour l&rsquo;activit\u00e9 physique<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<li>Personne de contact du personnel EHC<\/li>\n\t\t\t\t\t\t\t\t\t\t\t\t\t\t\t<\/ul>\n\t\t\t\t\t\t<\/div>\n\t\t\t\t\t<\/div>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<div>\t\t\t\t\t\t\t<div class=\"content mt-12 lg:mt-0\">\n\t\t\t\t\t\t\t\t\t\t\t<div class=\"title h3 text-50 !mb-24\">\n\t\t\t\t\t\t\t\u00c0 propos de la campagne #ThisWay\t\t\t\t\t\t<\/div>\n\t\t\t\t\t\t\t\t\t\t<p><span style=\"font-weight: 400;\">L&rsquo;activit\u00e9 physique est essentielle pour les patients atteints de troubles de la coagulation car elle renforce les muscles et les articulations, r\u00e9duisant ainsi la probabilit\u00e9 d&rsquo;\u00e9pisodes h\u00e9morragiques et de l\u00e9sions articulaires. En outre, l&rsquo;exercice r\u00e9gulier am\u00e9liore la sant\u00e9 cardiovasculaire g\u00e9n\u00e9rale et la qualit\u00e9 de vie en favorisant le bien-\u00eatre physique et mental. <\/span><\/p>\n<p><span style=\"font-weight: 400;\">La campagne #ThisWay de l&rsquo;EHC <\/span><b>campagne #ThisWay<\/b><span style=\"font-weight: 400;\"> vise \u00e0 promouvoir la sant\u00e9 physique et mentale et le bien-\u00eatre par le biais d&rsquo;une s\u00e9rie d&rsquo;initiatives, telles que le partage d&rsquo;histoires de patients, la facilitation de d\u00e9fis d&rsquo;activit\u00e9 physique et l&rsquo;organisation de visites \u00e0 pied pendant les conf\u00e9rences de l&rsquo;EHC, entre autres.<\/span><\/p>\n<h5><b>T\u00e9moignages de patients<\/b><\/h5>\n<p><span style=\"font-weight: 400;\">L&rsquo;EHC m\u00e8ne r\u00e9guli\u00e8rement des entretiens et recueille des r\u00e9cits de patients afin de mieux comprendre l&rsquo;exp\u00e9rience des personnes atteintes d&rsquo;un trouble rare de la coagulation et de donner un aper\u00e7u du point de vue des soignants sur l&rsquo;impact de ces troubles sur la qualit\u00e9 de vie. Nombre de ces r\u00e9cits de patients servent d&rsquo;inspiration \u00e0 d&rsquo;autres patients pour surmonter les d\u00e9fis li\u00e9s au bien-\u00eatre physique et mental. <\/span><\/p>\n<ul>\n<li><strong><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-thisway-histoire-ross-bennett\/\" target=\"_blank\" rel=\"noopener\">L&rsquo;histoire de Ross<\/a><\/strong><span style=\"font-weight: 400;\"> (Royaume-Uni, patient atteint d&rsquo;h\u00e9mophilie B s\u00e9v\u00e8re)<\/span><\/li>\n<li><strong><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-thisway-histoire-scott-mclean\/\" target=\"_blank\" rel=\"noopener\">L&rsquo;histoire de Scott<\/a><\/strong><span style=\"font-weight: 400;\"> (Royaume-Uni, patient atteint d&rsquo;h\u00e9mophilie A s\u00e9v\u00e8re)<\/span><\/li>\n<li><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-histoire-thisway-william-mckeown\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\"><strong>L&rsquo;histoire de William<\/strong><\/span><\/a><span style=\"font-weight: 400;\"> (Royaume-Uni, patient atteint d&rsquo;h\u00e9mophilie A s\u00e9v\u00e8re)<\/span><\/li>\n<li><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-thisway-histoire-annabel-kattai\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\"><strong>L&rsquo;histoire d&rsquo;Annabel<\/strong><\/span><\/a><span style=\"font-weight: 400;\"> (Estonie, patiente atteinte de la maladie de von Willebrand)<\/span><\/li>\n<li><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-histoire-thisway-adam-trojanczyk\/\" target=\"_blank\" rel=\"noopener\"><strong>L&rsquo;histoire d&rsquo;Adam<\/strong><\/a> (Pologne, patient atteint d&rsquo;h\u00e9mophilie B s\u00e9v\u00e8re)<\/li>\n<li><strong><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-thisway-histoire-camilla-wensing\/\" target=\"_blank\" rel=\"noopener\">L&rsquo;histoire de Camilla<\/a><\/strong> (Suisse\/Su\u00e8de, aidant familial)<\/li>\n<li><span style=\"font-weight: 400;\"><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-thisway-histoire-mitja-kavcic\/\" target=\"_blank\" rel=\"noopener\"><strong>L&rsquo;histoire de Mitja<\/strong> <\/a><\/span><span style=\"font-weight: 400;\">(Slov\u00e9nie, patiente atteinte d&rsquo;h\u00e9mophilie A s\u00e9v\u00e8re<\/span>)<\/li>\n<li><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-thisway-histoire-gertu-saaretalu\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\"><strong>L&rsquo;histoire de Gertu<\/strong><\/span><\/a> (Estonie, patient atteint d&rsquo;h\u00e9mophilie A s\u00e9v\u00e8re)<\/li>\n<li><a href=\"https:\/\/community.ehc.eu\/fr\/histoires\/une-thisway-histoire-nir-sharon\/\" target=\"_blank\" rel=\"noopener\"><span style=\"font-weight: 400;\"><strong>L\u2019histoire de Nir<\/strong><\/span><\/a> (Isra\u00ebl, un patient atteint d\u2019h\u00e9mophilie s\u00e9v\u00e8re A)<\/li>\n<\/ul>\n<h5><b>D\u00e9fis en mati\u00e8re d&rsquo;activit\u00e9 physique<\/b><\/h5>\n<p><span style=\"font-weight: 400;\">L&rsquo;EHC coordonne fr\u00e9quemment des d\u00e9fis d&rsquo;activit\u00e9 physique au sein de la communaut\u00e9 afin de stimuler la motivation et d&rsquo;inciter \u00e0 la participation, en introduisant des \u00e9l\u00e9ments de plaisir et en cultivant la camaraderie. Ces activit\u00e9s visent \u00e0 am\u00e9liorer le bien-\u00eatre physique et mental, \u00e0 renforcer les liens communautaires et \u00e0 accro\u00eetre la sensibilisation et la d\u00e9fense des droits. <\/span><\/p>\n<h5><b>Subventions pour l&rsquo;activit\u00e9 physique dans le cadre du programme EHC<\/b><\/h5>\n<p><span style=\"font-weight: 400;\">Avec la subvention pour l&rsquo;activit\u00e9 physique (PAG), l&rsquo;EHC souhaite soutenir les organisations nationales membres (ONM) dans l&rsquo;organisation d&rsquo;activit\u00e9s physiques et de physioth\u00e9rapie.  <a href=\"https:\/\/www.ehc.eu\/membership\/#grants\" target=\"_blank\" rel=\"noopener\"><strong>En savoir plus sur les subventions EHC.<\/strong><\/a><\/span><\/p>\n<h5><b>Podcasts #ThisWay<\/b><\/h5>\n<p><a href=\"https:\/\/open.spotify.com\/episode\/7GEIsCXv5taCmVx0ythwxA?si=08d98db34e8a4980\" target=\"_blank\" rel=\"noopener\">\u00c9coutez-les sur Spotify EHC.<\/a><\/p>\n<h5><b>Vid\u00e9os #ThisWay<\/b><\/h5>\n<p><a href=\"https:\/\/www.youtube.com\/@EHCTVChannel\/playlists\" target=\"_blank\" rel=\"noopener\">Regardez-les sur la cha\u00eene YouTube d\u2019EHC.<\/a><\/p>\n<h5><strong>Personne de contact du personnel EHC<\/strong><\/h5>\n<p><span style=\"font-weight: 400;\">Si vous avez des questions ou si vous souhaitez vous impliquer, veuillez contacter <\/span><a href=\"https:\/\/www.ehc.eu\/about-ehc\/governance\/our-team\/\" target=\"_blank\" rel=\"noopener\"><b>Zita Gacser<\/b><\/a><span style=\"font-weight: 400;\">Responsable de la communaut\u00e9 et des projets de l&rsquo;EHC. <\/span> <\/p>\n\t\t\t\t<\/div>\n\t\t\t\t\t\t<\/div>\t\t<\/div>\n\t<\/div>\n\t<figure class=\"absolute top-0 right-[-11%] size-full opacity-[12%] flex justify-end items-start\">\n\t\t<div class=\"size-[116rem] img-contain relative left-[4%]\" data-scroll data-fade-left>\n\t\t\t<img decoding=\"async\" loading=\"lazy\" src=\"https:\/\/community.ehc.eu\/wp-content\/themes\/cbd\/img\/bg-red.svg\" alt=\"bg\">\n\t\t<\/div>\n\t<\/figure>\n<\/section><!-- recent-events -->\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":3,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"footnotes":""},"class_list":["post-4993","page","type-page","status-publish","hentry"],"acf":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/pages\/4993","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/users\/3"}],"replies":[{"embeddable":true,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/comments?post=4993"}],"version-history":[{"count":2,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/pages\/4993\/revisions"}],"predecessor-version":[{"id":5860,"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/pages\/4993\/revisions\/5860"}],"wp:attachment":[{"href":"https:\/\/community.ehc.eu\/fr\/wp-json\/wp\/v2\/media?parent=4993"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}