On this International Women’s Day, the EHC Women and Bleeding Disorders (WBD) Committee stands in solidarity with women living with bleeding disorders, many of whom are undiagnosed or misdiagnosed for years, leading to delayed care and increased challenges. It’s time to change that.
A month ago, we invited all women patients to raise their voices by sharing a word or a sentence about their lived experiences. Today, we proudly unveil our Wall of Words, a tribute to their stories, struggles, and triumphs.
Your courage inspires us, and we honour the strength you bring to our community. By amplifying your voices, we can pave the way for better recognition, diagnosis, and treatment. Thank you for your bravery. Together, we will continue to break barriers and inspire change.
Here are the contributions shared by women with bleeding disorders in different languages:
- Born in the 60s, raised in the 70s, diagnosed in the 90s. I survived.
- Cheer up! The sun is always shining, but sometimes it hides behind clouds.
- Living as a woman with a bleeding disorder means embracing strength in the face of uncertainty, advocating for awareness, and proving that resilience runs deeper than blood.
- Gdyby podczas menstruacji nie przetaczano mi fibrynogenu, bym się wykrwawiała (If I hadn’t been transfused with fibrinogen during my menstruation, I would have bled).
- Strength through community with other women in the same situation.
- A warrior, not a victim!
- Even superwomen have their weaknesses.
- I go through life with a smile! Nothing can break me.
- I’m strong! I can overcome everything.
- Even superheroes have their weaknesses.
- I’ll do it my way!
- Ever-changing.
- Discovery.
- Challenge.
- Challenging.
- Helpless.
- Unknowing.
- Motherhood.
- Resilience, Worth, Self-love, Warrior.
- Resilience.
- A lifelong fear and burden.
- The fight to be taken seriously by doctors.
- Adaptability.
- Enduring & persistent.
- Inclusión (Inclusion).
- Spontaneous.
- Learning without knowledge.
- Borba bez kraja (A fight without end).
- Futuro (Future).
- Siniaki; bladość; porcelanowa cera (Bruises; paleness; porcelain complexion).
- Uthållighet och inre styrka (Perseverance and inner strength).
On International Women’s Day, we wish to remind all women with bleeding disorders and their caregivers to take the EHC Annual Survey open until April 1.
The survey is:
- Open to patients and their caregivers,
- Focused on diagnosis, treatment, care, daily life, and support,
- Available in 11 languages.