EHC Community: Virtual Community Building

Virtual Community
Building

The European Haemophilia Consortium (EHC) is a non-profit, non-governmental organisation that works to improve the quality of life for people with congenital bleeding disorders such as haemophilia, von Willebrand Disease (VWD) and other rare bleeding disorders in Europe.

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Conference

New Technologies in Rare Bleeding Disorders Workshop

EHC will hold its 2024 Workshop on New Technologies in Rare Bleeding Disorders on 1-3 November 2024 in Helsinki, Finland.

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Focus Areas: Disease-based

European Rare & Inhibitor Network

Haemophilia A

Haemophilia B

Von Willebrand Disease (VWD)

Focus Areas: Aspect-based

Ageing

Dental Care

Mental Health

Physical Activity

Women and Bleeding Disorders(WBD)

Youth

Community Insights

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News

EHC delegation visits Istanbul for its second NMO visit in 2024

In October 2024, President Miguel Crato, CEO Olivia Romero Lux, and Education & Communication Manager Daria Camilli visited Istanbul to engage with healthcare professionals and patients about the state of bleeding disorder care in Türkiye.

Projects

EHC and ERN-EuroBloodNet “Topic on Focus: von Willebrand Disease (VWD)”

EHC is proud to announce the launch of its collaborative educational project together with the ERN-EuroBloodNet “Topic on Focus: von Willebrand Disease (VWD)” for patients, patient organisations, and healthcare professionals.

Awareness

VWD Awareness Day 2024

We are happy to celebrate together with all our community European Von Willebrand Disease (VWD) Awareness Day 2024!