The European Haemophilia Consortium (EHC) has launched a new survey aimed at people living with von Willebrand Disease (VWD), inviting them to share their experiences to help shape the future of care across Europe.
The survey focuses on three key areas: access to care, diagnostic timelines, and the mental health of people living with VWD. Responses will be used to identify gaps in care, better understand how long it takes for patients to receive a diagnosis, and assess the psychological impact of living with the condition.
Available in 13 languages, the survey is designed to reach as many members of the VWD community as possible across the continent. Participants have until 7 September 2026 to complete it.
Von Willebrand Disease is the most common inherited bleeding disorder, yet it remains widely underdiagnosed — particularly among women — and access to appropriate care varies significantly across European countries. Patient-reported data is a powerful tool for advocacy, and the EHC is calling on all those affected to make their voice heard.
