Our community events
07 May 2026
Webinar
Caring for the Carers
Join us for a special #ThisWay webinar with Amy Owen-Wyard, a Registered Senior Mental Health Nurse based in the UK with experience supporting people living with complex and rare health conditions and the mother of a child with an extremely rare bleeding disorder.
18 May 2026
Webinar
Cardiovascular Issues and Other Comorbidities
Join us on 18 May 2026 for this informative webinar in partnership with ERN-EuroBloodNet and in collaboration with ERN GUARD-Heart, tailored for people living with rare bleeding disorders, their families, caregivers, and the broader community.
04 – 06 Dec 2026
Conferences
ERIN Summit 2026
The ERIN Summit 2026 will take place in Prague, Czechia, from 4 to 6 December.
Community Events
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18 May 2026
Webinar
Cardiovascular Issues and Other Comorbidities
Join us on 18 May 2026 for this informative webinar in partnership with ERN-EuroBloodNet and in collaboration with ERN GUARD-Heart, tailored for people living with rare bleeding disorders, their families, caregivers, and the broader community.
04 – 06 Dec 2026
Conferences
ERIN Summit 2026
The ERIN Summit 2026 will take place in Prague, Czechia, from 4 to 6 December.