Dental Care

“Taking adequate steps towards good oral hygiene can be a life-changer for people with bleeding disorders to avoid the risk of undergoing complex and invasive dental procedures.”

Aspect-based

According to the Platform for Better Oral Health, oral diseases and oral conditions are the most prevalent non-communicable (or chronic) diseases in Europe. They impact people throughout their life course, with higher prevalence and worse outcomes among vulnerable populations.

In fact, caring for oral and dental health at every stage of life is even more essential for people with congenital bleeding disorders. If left untreated, this patient population can experience significant bleeds in the mouth, resulting in increased complications in their dental treatments. Many patients and treating dentists fear each other, often due to a lack of education on both parts.

Awareness Campaigns

World Oral Health Day: EHC launches a campaign for better dental care for people with bleeding disorders

On 20 March 2026, the EHC called for change. People with bleeding disorders face significant barriers to accessing safe dental care, from refusal by unfamiliar dentists to preventable bleeding complications. Our new campaign features two essential reads: our policy statement calling for integration of oral health into Rare Disease Plans, stronger multidisciplinary care, and investment in research and education; plus powerful stories from our community revealing the real-world impact of these gaps in care.