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EHC delegation visits Slovenia to strengthen bleeding disorders care
The EHC delegation visited Ljubljana, in Slovenia, on 3–4 November 2025 to learn more about national approaches to bleeding disorders care and to support joint efforts to enhance treatment, access, and patient engagement across the country.
Awareness
New EHC children’s book now available to help explain von Willebrand Disease
Written by Cathy Verbraeken and illustrated by Mariana Ostanik, with guidance from the EHC VWD Committee, “Emma and the Playhouse” supports children with VWD in sharing their experiences and helps children without the condition develop understanding and compassion for their peers.
UHS holds IV National Conference in Serbia
The Serbian Haemophilia Society (UHS) held its annual National Conference from 29 to 31 August 2025 in Vrnjačka Banja, Serbia.
EHC supports ARH Haemophilia School 2025 and releases Romanian translation of EHC Booklet on Women with Haemophilia
EHC proudly supported the Romanian Haemophilia Association at their Haemophilia School 2025, where the EHC Women and Bleeding Disorders Committee also made a special presentation launching the Romanian translation of the EHC “Is haemophilia (fe)male?” Booklet.
ARH launches sport and education initiative in Romania
Our Romanian National Member Organisation successfully launched the inaugural “Hemo-Filiada – Together for Education, Sport, and Health!” in July 2025.
New EHC Mental Health Survey for the Bleeding Disorders Community: Share Your Experience
The EHC Mental Health Working Group invites individuals with bleeding disorders and their caregivers to participate in this important initiative, accessible in 19 languages. The survey will run until 9 November 2025.
DHG youth sets sail for adventure: third annual sailing trip navigates new waters
Our German National Member Organisation took 12 young participants on an extraordinary voyage through the Netherlands’ Wadden Sea in April 2025.
UHS Children’s Summer Camp empowers young patients and families in Serbia
Our Serbian National Member Organisation successfully organised its annual Children’s Summer Camp in July 2025, gathering around 40 attendees.
SHG celebrates 60 years with great success in Switzerland
Our Swiss National Member Organisation had plenty to celebrate during their 60th anniversary weekend in Villars-sur-Ollon in May 2025, with around 100 community members participating from across Switzerland.