In April 2024, Društvo hemofilikov Slovenije (DHS), our Slovenian National Member Organisation, marked World Haemophilia Day with a powerful public exhibition focused on elevating underrepresented voices in the bleeding disorders community — particularly women and girls.

Earlier this month, our Portuguese National Member Organisation hosted its biannual Women’s Conference, bringing together 25 participants for an engaging weekend dedicated to congenital coagulopathies in women.

We are thrilled to announce the launch of this unique opportunity designed to empower and educate people with bleeding disorders, as well as their caregivers.

EHC is currently seeking up to three volunteers to join the ERIN Committee until the end of its current term in February 2026.

On this International Women’s Day, the EHC Women and Bleeding Disorders Committee shares a Wall of Words to stand in solidarity with women with bleeding disorders.

EHC is seeking two volunteers to join its new Mental Health Working Group established to focus on the development of a mental health survey.

Our European Rare & Inhibitor Network invites you to join us in marking Rare Disease Day, a moment to raise awareness for the community of patients with extremely rare bleeding disorders, many of whom still struggle to receive a proper diagnosis or the treatment they need. 

Ahead of International Women’s Day, the EHC Women and Bleeding Disorders (WBD) Committee is proud to launch a survey on girls and women with bleeding disorders.

In the framework of our #ThisWay campaign, the EHC interviewed Mitja, a patient from Slovenia, who shared his journey of growing up with haemophilia and navigating the challenges of living with a rare bleeding disorder.