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Exhibitions
Spotlighting Female Voices: DHS Hosts Exhibition on Bleeding Disorders in Ljubljana
In April 2024, Društvo hemofilikov Slovenije (DHS), our Slovenian National Member Organisation, marked World Haemophilia Day with a powerful public exhibition focused on elevating underrepresented voices in the bleeding disorders community — particularly women and girls.
News
APH Women’s Conference Shines Spotlight on Coagulopathies in Women
Earlier this month, our Portuguese National Member Organisation hosted its biannual Women’s Conference, bringing together 25 participants for an engaging weekend dedicated to congenital coagulopathies in women.
Join the EHC #ThisWay Webinar Series 2025
We are thrilled to announce the launch of this unique opportunity designed to empower and educate people with bleeding disorders, as well as their caregivers.
EHC calls for volunteers to join the European Rare and Inhibitor Network (ERIN) Committee
EHC is currently seeking up to three volunteers to join the ERIN Committee until the end of its current term in February 2026.
Awareness
EHC marks International Women’s Day 2025 by honouring women with bleeding disorders
On this International Women’s Day, the EHC Women and Bleeding Disorders Committee shares a Wall of Words to stand in solidarity with women with bleeding disorders.
EHC calls for volunteers to join our new Mental Health Working Group
EHC is seeking two volunteers to join its new Mental Health Working Group established to focus on the development of a mental health survey.
EHC shines a light on extremely rare bleeding disorders to mark Rare Disease Day 2025
Our European Rare & Inhibitor Network invites you to join us in marking Rare Disease Day, a moment to raise awareness for the community of patients with extremely rare bleeding disorders, many of whom still struggle to receive a proper diagnosis or the treatment they need.
Take the EHC Annual Survey on Women and Girls with Bleeding Disorders
Ahead of International Women’s Day, the EHC Women and Bleeding Disorders (WBD) Committee is proud to launch a survey on girls and women with bleeding disorders.
Stories
A #ThisWay Story: Mitja Kavčič
In the framework of our #ThisWay campaign, the EHC interviewed Mitja, a patient from Slovenia, who shared his journey of growing up with haemophilia and navigating the challenges of living with a rare bleeding disorder.