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The EHC calls for volunteers to join our new Mental Health Working Group, and WBD and VWD Committees
The EHC is thrilled to announce several new opportunities for involvement in key initiatives – open to EHC NMO representatives only.
Watch the EHC Conference 2024 Video Highlights
We’re delighted to share with you a special video created by the Bulgarian Haemophilia Association, featuring highlights from the EHC Conference 2024 that was hosted in Sofia on 4-6 October.
The EHC President was hosted as a speaker at the APH 10th National Congress in Portugal
This remarkable event, held over the weekend of 23-24 November 2024 in the historic city of Tomar, brought together 200 participants, featuring an inspiring and diversified programme.
Highlights from the EHC Women and Bleeding Disorders Committee 2024 Strategic Retreat
The EHC Women and Bleeding Disorders (WBD) Committee held a strategic retreat on 26-27 October 2024, at the EHC premises in Brussels, Belgium
AFH calls for athletes to join the 2025 UTMB race to raise donations for the French bleeding disorders community
For the third consecutive year, the Association française des hémophiles (AFH) is eligible for the Ultra-Trail du Mont-Blanc (UTMB) charity bibs.
In memory of Jess McLean (Page): a courageous advocate from the UK
With great sadness, we learned of the passing of Jess McLean (Page), much-loved Youth Ambassador of the Haemophilia Society, our UK National Member Organisation.
Awareness
A fall season full of events for our Romanian NMO: learn more about their latest activities
Between August and September 2024 the Asociația Română de Hemofilie (ARH) organised a series of events in Romania that demonstrates the critical role that education, community support, and advocacy play in improving the lives of people with bleeding disorders.
Discover the informational material created by our Swedish NMO
Discover the informational material created by Förbundet Blödarsjuka i Sverige, our Swedish NMO
EHC delegation visits Istanbul for its second NMO visit in 2024
In October 2024, President Miguel Crato, CEO Olivia Romero Lux, and Education & Communication Manager Daria Camilli visited Istanbul to engage with healthcare professionals and patients about the state of bleeding disorder care in Türkiye.