Objectives of ERIN

• To better understand and prioritise the needs of people with ultra rare bleeding disorders both at a community level as well as at a policymaking level; 

• To empower people with ultra rare bleeding disorders to drive the research in the field of ultra rare bleeding disorders thus taking steps to improve the treatment and care for these patient cohorts;

• To enable social and intellectual connections between people with ultra rare bleeding disorders and between their respective caregivers to allow them to mutually support and educate one another; and 

• To ensure that people with ultra rare bleeding disorders themselves are also active and effective at engaging directly with decision-makers to ensure that they receive the treatment and care that they need. 
• To continue offering the necessary support to people with inhibitors and their caregivers, ensuring the transfer of knowledge to local inhibitor communities.