About the Event
The EHC invites you to save the date for the European Rare and Inhibitor Network (ERIN) Summit 2024 taking place in Zagreb, Croatia, from 28 November to 1 December. It will be our second community-facing event aiming to offer a special time and space for all people with extremely rare bleeding disorders and people with haemophilia who have inhibitors, as well as their family members and caregivers.
Besides the community-building aspect, the ERIN Summit will also offer possibilities to the participants to educate and empower themselves and to improve the quality of their lives. In addition, the Summit will be the place to spend time in a relaxing environment and enjoy social activities together.
What is the ERIN?
In 2022, the EHC’s European Inhibitor Network (EIN) was expanded and became the European Rare and Inhibitor Network (ERIN), including extremely rare bleeding disorders, such as platelet disorders or extremely rare factor deficiencies.
The objective of the programme is to understand and prioritise the needs of people with ultra-rare bleeding disorders, both at a community level as well as at a policy-making level, and to empower people with ultra-rare bleeding disorders to drive the research in the field of ultra-rare bleeding disorders thus taking steps to improve the treatment and care for these patient cohorts.
Who can attend?
- Individuals affected by an inhibitor:
- An adult with haemophilia who has inhibitors
- A caregiver/partner of an adult with haemophilia who has inhibitors
- A child with haemophilia who has inhibitors
- Parents/siblings of a child with haemophilia who has inhibitors
- Individuals affected by an extremely rare bleeding disorder:
- An adult with an extremely rare bleeding disorder
- A caregiver/partner of an adult with an extremely rare bleeding disorder
- A child with an extremely rare bleeding disorder
- Parents/siblings of a child with an extremely rare bleeding disorder
