Our community insights
Filter By:
Sort By:
News
ARH Launches Sport and Education Initiative
Our Romanian National Member Organisation successfully launched the inaugural “Hemo-Filiada – Together for Education, Sport, and Health!” in July 2025.
New EHC Mental Health Survey for the Bleeding Disorders Community: Share Your Experience
The EHC Mental Health Working Group invites individuals with bleeding disorders and their caregivers to participate in this important initiative, accessible in 17 languages. The survey will run until 9 November 2025.
DHG Youth Sets Sail for Adventure: Third Annual Sailing Trip Navigates New Waters
Our German National Member Organisation took 12 young participants on an extraordinary voyage through the Netherlands’ Wadden Sea in April 2025.
UHS Children’s Summer Camp Empowers Young Patients and Families in Serbia
Our Serbian National Member Organisation successfully organised its annual Children’s Summer Camp in July 2025, gathering around 40 attendees.
SHG Celebrates 60 Years with Great Success in Switzerland
Our Swiss National Member Organisation had plenty to celebrate during their 60th anniversary weekend in Villars-sur-Ollon in May 2025, with around 100 community members participating from across Switzerland.
Awareness
UK Haemophilia Society Launches Major Report on Women With Bleeding Disorders at Houses of Parliament
At the beginning of July, our UK National Member Organisation launched a groundbreaking report with MPs, healthcare professionals, and advocates to highlight how the UK’s health services are failing women and girls with bleeding disorders.
EHC Joins Belarus Haemophilia Society Conference on Treatment in Bleeding Disorders
EHC President Miguel Crato, along with Prof Ana Boban and Dr Christoph Königs (EHC MAG Members), participated virtually in the Belarus Haemophilia Society’s Conference on Treatment in Bleeding Disorders.
ARH organised Haemophilia Bike Challenge around Romania’s Palace of Parliament
In Bucharest, approximately 100 people participated in the Haemophilia Bike Challenge around the Palace of Parliament organised by our Romanian National Member Organisation.
Join the #ThisWay Photo Walk Challenge at the EHC Leadership Conference
The #ThisWay Photo Walk Challenge is a light, self-guided walking activity that will take place in the afternoon of June 27, starting from the Leadership Conference venue.
