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EHC supports ARH Haemophilia School 2025 and releases Romanian translation of EHC Booklet on Women with Haemophilia
EHC proudly supported the Romanian Haemophilia Association at their Haemophilia School 2025, where the EHC Women and Bleeding Disorders Committee also made a special presentation launching the Romanian translation of the EHC “Is haemophilia (fe)male?” Booklet.
ARH launches sport and education initiative in Romania
Our Romanian National Member Organisation successfully launched the inaugural “Hemo-Filiada – Together for Education, Sport, and Health!” in July 2025.
New EHC Mental Health Survey for the Bleeding Disorders Community: Share Your Experience
The EHC Mental Health Working Group invites individuals with bleeding disorders and their caregivers to participate in this important initiative, accessible in 19 languages. The survey will run until 9 November 2025.
DHG youth sets sail for adventure: third annual sailing trip navigates new waters
Our German National Member Organisation took 12 young participants on an extraordinary voyage through the Netherlands’ Wadden Sea in April 2025.
UHS Children’s Summer Camp empowers young patients and families in Serbia
Our Serbian National Member Organisation successfully organised its annual Children’s Summer Camp in July 2025, gathering around 40 attendees.
SHG celebrates 60 years with great success in Switzerland
Our Swiss National Member Organisation had plenty to celebrate during their 60th anniversary weekend in Villars-sur-Ollon in May 2025, with around 100 community members participating from across Switzerland.
Awareness
UK Haemophilia Society launches major Report on Women with Bleeding Disorders at Houses of Parliament
At the beginning of July, our UK National Member Organisation launched a groundbreaking report with MPs, healthcare professionals, and advocates to highlight how the UK’s health services are failing women and girls with bleeding disorders.
EHC joins Belarus Haemophilia Society Conference on treatment in bleeding disorders
EHC President Miguel Crato, along with Prof Ana Boban and Dr Christoph Königs (EHC MAG Members), participated virtually in the Belarus Haemophilia Society’s Conference on Treatment in Bleeding Disorders.
ARH organised Haemophilia Bike Challenge around Romania’s Palace of Parliament
In Bucharest, approximately 100 people participated in the Haemophilia Bike Challenge around the Palace of Parliament organised by our Romanian National Member Organisation.
