EHC Community News and Insights
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Stories
A #ThisWay Story: Mitja Kavčič
In the framework of our #ThisWay campaign, the EHC interviewed Mitja, a patient from Slovenia, who shared his journey of growing up with haemophilia and navigating the challenges of living with a rare bleeding disorder.
Awareness
EHC calls women with bleeding disorders: join our Wall of Words for International Women’s Day
The EHC WBD Committee invites all women with bleeding disorders to participate in a special initiative to honour International Women’s Day — a Wall of Words.
EHC Von Willebrand Disease Awareness Day 2025: Making The Invisible Visible
For the third consecutive year, the EHC leads the campaign for European VWD Awareness Day on February 1, bringing attention to the challenges faced by patients with VWD. This year’s theme is “Making the invisible visible”.
News
Our Bosnian and Herzegovinian NMO held its Annual General Assembly at the end of 2024
Udruženje Hemofiličara Bosne i Hercegovine organised its Annual General Assembly on 22 December 2024. The assembly had over 60 active members present, hence reaching the quorum.
Celebrating the end of 2024: a message from the EHC President and the highlights of our best moments
As we reflect on the past year, we are deeply grateful for the dedication of our NMOs, partners, and community. Join us in celebrating some of the best moments from our 2024 events and let’s move forward with renewed energy!
Watch the EHC Conference 2024 Video Highlights
We’re delighted to share with you a special video created by the Bulgarian Haemophilia Association, featuring highlights from the EHC Conference 2024 that was hosted in Sofia on 4-6 October.
The EHC President was hosted as a speaker at the APH 10th National Congress in Portugal
This remarkable event, held over the weekend of 23-24 November 2024 in the historic city of Tomar, brought together 200 participants, featuring an inspiring and diversified programme.
Highlights from the EHC Women and Bleeding Disorders Committee 2024 Strategic Retreat
The EHC Women and Bleeding Disorders (WBD) Committee held a strategic retreat on 26-27 October 2024, at the EHC premises in Brussels, Belgium
AFH calls for athletes to join the 2025 UTMB race to raise donations for the French bleeding disorders community
For the third consecutive year, the Association française des hémophiles (AFH) is eligible for the Ultra-Trail du Mont-Blanc (UTMB) charity bibs.