On this International Women’s Day, the EHC Women and Bleeding Disorders Committee shares a Wall of Words to stand in solidarity with women with bleeding disorders.

EHC is seeking two volunteers to join its new Mental Health Working Group established to focus on the development of a mental health survey.

Our European Rare & Inhibitor Network invites you to join us in marking Rare Disease Day, a moment to raise awareness for the community of patients with extremely rare bleeding disorders, many of whom still struggle to receive a proper diagnosis or the treatment they need. 

Ahead of International Women’s Day, the EHC Women and Bleeding Disorders (WBD) Committee is proud to launch a survey on girls and women with bleeding disorders.

In the framework of our #ThisWay campaign, the EHC interviewed Mitja, a patient from Slovenia, who shared his journey of growing up with haemophilia and navigating the challenges of living with a rare bleeding disorder.

The EHC WBD Committee invites all women with bleeding disorders to participate in a special initiative to honour International Women’s Day — a Wall of Words.

For the third consecutive year, the EHC leads the campaign for European VWD Awareness Day on February 1, bringing attention to the challenges faced by patients with VWD. This year’s theme is “Making the invisible visible”.

Udruženje Hemofiličara Bosne i Hercegovine organised its Annual General Assembly on 22 December 2024. The assembly had over 60 active members present, hence reaching the quorum.

As we reflect on the past year, we are deeply grateful for the dedication of our NMOs, partners, and community. Join us in celebrating some of the best moments from our 2024 events and let’s move forward with renewed energy!