In 2017, the EHC launched a survey to better understand the unique challenges faced by this often-overlooked segment of the patient population. Now, 8 years later, we’re revisiting these issues to assess the progress made and highlight areas for improvement in diagnosis, care, and support.
The survey is:
Open to girls, women, and their caregivers
Focused on diagnosis, treatment, care, daily life, and support
Available in multiple languages
The survey will close on April 1, 2025 and is available in the following languages: