Last Updated:
September 2025
The European Haemophilia Consortium (EHC) is committed to protecting and safeguarding your personal data. As part of this commitment, we have updated our Privacy Policy to meet the high standards of the new European General Data Protection Regulation. We respect your privacy and treat your personal data with the strictest confidentiality.
This Cookies Policy is intended to inform you, in a transparent manner, about the data we collect, the purpose for collecting it, the way we use it and the rights you have regarding the processing of such data.
WHAT ARE COOKIES?
Cookies are small pieces of data or text files placed on your local computer by websites. Such Cookies can have different purposes: for instance, there are Technical Cookies (language settings, for example), Session Cookies (temporary cookies) and Tracking Cookies (cookies following and recording your behaviour on the website in order to be able to offer a better user experience).
A Cookie contains a unique code which allows the recognition of your browser during a visit to the Website or to improve your user experience during repeated visits to the platform.
Cookies can be placed by the server of the website you are visiting or by a partner with whom this website collaborates. The server of the website can only read the Cookies it has placed itself. It does not have access to other information contained on your computer or mobile device.
The content of a Cookie usually consists of the name of the service that placed the cookie, an expiry date and a unique numerical code.
Cookies generally ease and speed up the interaction between users and the website, and help users navigate between the different parts of the website. Cookies can also be used to personalise the content of the website to the user.
More information on the types of Cookies can be found on www.allaboutcookies.org.
EHC USES THE FOLLOWING COOKIES:
- Necessary Cookies
These Cookies are essential to be able to visit our Websites and to use particular parts of it. These Cookies allow you to navigate between the different parts of the Website or to complete forms and take part in discussions on our platform for example. Also, if you want to log in to the personal platform of EHC with your personal account, these Cookies are needed to check your identity in a safe manner before we allow access to your personal information. If you refuse these Cookies, certain parts of the Website may not work, or may not work optimally.
- Functional Cookies
These Cookies ease and facilitate the functioning of our Website for our Users and ensure a more personalised browsing experience. The Website uses a registration or a newsletter for instance. These Cookies can also be used to recognise you if you revisit the Website and to store your registration details or to remember the preferences you have indicated on the website.
- Advertisement Cookies
In specific cases, we use Cookies from reliable third parties. This website uses Jetpack, a WordPress plugin, which collects data to enhance website functionality and user experience. Jetpack’s Privacy Policy outlines how it handles user information, including data collection, storage, and usage practices.
Jetpack also provides tools to help website owners create customised privacy policies, explaining their specific data handling practices.
COOKIE MANAGEMENT
During your first visit to our Website, you are asked to accept our different types of Cookies. You can permit or refuse Cookies by each category. You can, at all times, change the Cookie Settings for our website via the hyperlink at the bottom of our website and so withdraw your permission.
You can refuse the installation of these Cookies during the first visit to the website by ticking ‘Reject All’ in the offered pop-up screen.
You can refuse the installation of Cookies via your Browser Settings. Switching off Cookies may mean that you can no longer use certain functionalities of the Website. You can find information on how to refuse cookies for most used browsers here: http://www.aboutcookies.org/
You can also, at any time, remove already installed Cookies from your computer or mobile device.
If you wish to use the Website without any restrictions, please make sure that Cookies are switched on in your browser. To switch on Cookies, do the following:
Browser – Microsoft Internet Explorer
- In Internet Explorer, click on ‘Internet options’ in the ‘Extra’ menu.
- Under the ‘Privacy’ tab, move the settings bar to ‘Low’ or ‘Accept all Cookies’ (setting above ‘medium’ switches off cookies).
- Click on ‘OK’.
Browser – Mozilla Firefox
- Click on ‘Firefox’ in the top left corner of your browser and then click on ‘Options’.
- Under the ‘Privacy’ tab, ensure that the ‘Let websites know that I do not wish to be followed’ is not ticked.
- Click on ‘OK’.
Browser – Google Chrome
- Click on ‘Extra’ at the top of your browser screen and select ‘Options’.
- Click on ‘Under the Hood’ tab, find the ‘Privacy’ part and select ‘Content settings’ button.
- Select ‘Allow local data to be set’.
Browser – Safari
- Click on the ‘Cog’ pictogram at the top of your browser screen and select the ‘Preference’ option.
- Click on ‘Security’, tick the option stating: ‘Block Cookies from third parties and advertisement cookies’.
- Click ‘Save’.
COMMUNICATION TO THIRD PARTIES
The EHC treats personal data as confidential information. It will not communicate them to third parties under any condition other than those specified in the Policy, such as to achieve the objectives set out and defined in this Policy, or under the conditions in which the law requires it to do so.
The EHC may communicate your personal information to third parties to the extent that such information is necessary for the performance of a contract. In such cases, these third parties will not communicate this information to other third parties.
The communication of this information to the aforementioned persons shall, in all circumstances, be limited to what is strictly necessary or required by the applicable regulations.
NOTE CONCERNING MINORS
Persons under the age of 13 and persons who do not have full legal capacity are not permitted to use the Website without parental consent.
UPDATES AND CHANGES TO THE POLICY
By informing Users through the Website, the EHC may modify and adapt the Policy, in particular, to comply with any new legislation and/or regulations applicable (such as the General Data Protection Regulation applicable from 25 May 2018), the recommendations of the Belgian Privacy Commission, the guidelines, recommendations and best practices of the European Data Protection Board and the decisions of the courts and tribunals on this issue.
APPLICABLE LAW AND COMPETENT COURT
The validity, interpretation and/or implementation of the Policy are subject to Belgian law.
In the event of a dispute relating to the validity, interpretation or implementation of the Policy, the courts and tribunals of Brussels have exclusive jurisdiction, to the extent permitted by the provisions of applicable private international law.