Haemophilia B is a rare congenital bleeding disorder that occurs in people with a limited amount of clotting factor IX/9. The severity of the disease will depend on the level of clotting factors present in the body.

Having haemophilia means that an individual’s body cannot naturally stop the bleeding that occurs once a blood vessel is damaged. If the bleed is not stopped and properly managed it can result in damage to the joints, which can cripple an individual and limit their range of movements. Furthermore, intracranial bleeds can be both debilitating and fatal. It is important to stress that besides being debilitating and life-threatening, bleeds are also extremely painful. This is why people with haemophilia need to have access to proper pain management.