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Registration

Registration is required to attend the webinar and is open for EHC National Member Organisations only.

Registrations are now closed.

For more information: Stefan Radovanovic at [email protected]

ERIN Rare Disease Day Webinar 2025
On 1 March 2025, 11.00 – 12.30
Language: English, Russian translation
Where: Online
Whom: EHC National Member Organisations

We warmly invite our European Rare and Inhibitor Network (ERIN) members to join us for a special Peer-to-Peer Webinar to mark Rare Disease Day 2025. The online event will take place on Saturday, March 1, 2025, time 11:00 AM CET.

This session will provide a platform to discuss the unique challenges faced by individuals living with extremely rare bleeding disorders and haemophilia with inhibitors. Whether you’re a patient, a parent, or a caregiver, we encourage you to participate and continue the meaningful conversations that began at the ERIN Summit.

As this session is designed to be a closed patient conversation, we require registration by delegates so we can share the dial-in details to you directly.

Past Events

View all events

Past Events

Women and bleeding disorders (IHS webinar) – 16 Oct 2024

Past Events

Expressing Emotions Through Art

Past Events

Addressing the Needs of People with Extremely Rare Bleeding Disorders

Past Events

Hereditary fibrinogen disorders: frequently asked questions

Past Events

Future of paediatric care for children with inherited bleeding disorders (IHS webinar) – 27 Nov 2024

Past Events

EHC and ERN VWD programme webinar “Maternity” – 28 Nov 2024

Past Events

Storytelling and Awareness

Past Events

EHC and ERN VWD programme webinar “VWD in the emergency room” – 16 Jan 2025

The European Haemophilia Consortium (EHC) is a non-profit, non-government organisation

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