European Rare and Inhibitor Network (ERIN) is pleased to invite the bleeding disorders community to a Rare Disease Day Webinar dedicated to Platelet Disorders.
People living with platelet disorders often experience bleeding symptoms similar to other inherited bleeding conditions, including easy bruising, nosebleeds, heavy menstruation, or prolonged bleeding after injuries or medical procedures. These disorders arise from abnormalities in platelet number or function and remain among the rarer and less widely understood bleeding conditions.
Organised by the EHC in collaboration with EAHAD, the European multi-disciplinary association of healthcare professionals providing care for people with haemophilia and other bleeding disorders, this webinar aims to raise awareness of platelet disorders and foster dialogue between clinicians, patients, and the wider community.
The online event will take place on Friday, 27 February at 18:00 CET, in the context of Rare Disease Day. Dial-in details will be shared with registered participants one day in advance.
Featured Speakers:
- Dr Roseline D’Oiron – Haematologist, Bicêtre Hospital, Paris, France
- Evelyn Grimberg – Patient Representative, The Netherlands
- Eva Kurre – Patient Representative, Germany
Facilitators:
- Dr Cristina Catarino – Haematologist, Santa Maria’s Hospital, Lisbon, Portugal
- Stefan Radovanović – EHC Patient Engagement and Community Lead
The session will bring together clinical perspectives, patient experiences, and interactive discussion to support a greater understanding of platelet disorders and the challenges faced by those living with them.
The webinar will be held in English, with Russian interpretation available.
Whether you are a person living with a bleeding disorder, a healthcare professional, a caregiver, or an advocate, we warmly encourage you to join this important Rare Disease Day conversation.
