Discover how ageing with a bleeding disorder doesn’t mean losing strength, independence, or quality of life. Join us for this informative webinar tailored for people living with rare bleeding disorders, their families, caregivers, and the broader community. Strong at Any Age – Redefining Frailty Together brings together clinical expertise and lived experience to explore how we can rethink frailty, promote resilience, and support healthy ageing for all.
In this session, Prof Susie Shapiro and Dr William McKeown will unpack what “frailty” really means in the context of bleeding disorders — focusing on practical insights, evidence-based strategies, and real-world perspectives that matter to patients. They’ll discuss how ageing affects physical strength, function, and overall well-being, and highlight ways to stay active, engaged, and empowered throughout life. There will also be time for live interaction and audience Q&A.
This webinar is the first one organised by the EHC in the Ageing Well with Rare Bleeding Disorders webinar series in partnership with ERN-EuropBloodNet (you can register for the whole series HERE).
This webinar series is part of the broader Living Well, Ageing Well, the EHC Ageing Project 2025–2026, which brings together experts, patients, and caregivers to explore topics like mobility, mental health, nutrition, comorbidity management, and more.
What to expect:
- Expert-led insights on redefining frailty in bleeding disorders
- Strategies to support strength and healthy ageing
- Lived experience perspectives
- Interactive Q&A with speakers
About the speakers
Susie Shapiro
Dr Shapiro is a Consultant Haematologist and Associate Professor at Oxford University. She works entirely in the field of haemostasis and thrombosis: haemophilia and other bleeding disorders, thrombosis and anticoagulation. She has particular interest in improving knowledge of aging and comorbidities in bleeding disorders including with respect to new innovative treatments. She is actively involved in clinical research trials, including many as local PI and national CI. Dr Shapiro is the NHS England National Speciality Advisor for Specialised Blood Disorders, and Chair of the Scientific SubCommittee on FVIII, FIX and Rare Coagulation Disorders for the International Society of Thrombosis and Haemostasis.
William McKeown
Dr McKeown practices as a consultant geriatrician and stroke physician at Antrim Area Hospital. He is also a patient with severe haemophilia and serves on the steering committees of the European Haemophilia Consortium and EUHASS. He leads undergraduate geriatric medicine teaching at Queen’s University Belfast. He previously completed a fellowship with the British Geriatric Society and was a recipient of the BIASP Warlow Prize. Given his personal and professional background, he has a particular interest in research on successful ageing for people with bleeding disorders.
