New EHC children’s book now available to help explain von Willebrand Disease

The EHC has released a new children’s book, Emma and the Playhouse, designed to help children affected by von Willebrand Disease (VWD) explain their condition to family, friends, and teachers. The book is now available for download on the EHC Community website.

Written by Cathy Verbraeken and illustrated by Mariana Ostanik, with guidance from the EHC VWD Committee, the book serves a dual purpose: supporting children with VWD in sharing their experiences and helping children without the condition develop understanding and compassion for their peers.

The hard copy of the book was officially launched at the EHC VWD Summit in Riga, Latvia, in September 2025. It is now accessible in three formats: a stapled softcover brochure, a hardcover glued edition, and an ebook. Both printed editions can be downloaded through the EHC Community website.

Hardcover book: download the interior design and cover
Softcover brochure: download the interior design and cover
Ebook: please contact [email protected] to request it

EHC National Member Organisations (NMOs) are encouraged to translate the book into their local languages to make it accessible to their communities. Financial support for translation and printing is available through the EHC activity grant scheme, and the EHC can assist with design layout for translated editions.

For inquiries regarding use, reproduction, translation, or redistribution of the publication, please contact [email protected].

See similar articles

View more articles

News

EHC visits the Bosnian and Herzegovinian bleeding disorders community

In July 2024, the EHC was on its first country visit under Miguel Crato’s presidency mandate. The EHC joined forces with the WFH, and paid a visit to its Bosnian and Herzegovinian NMO to assess the situation for patients with bleeding disorders and caregivers in the country and discuss with decision-makers ways to improve care and quality of life for all.

News

EHC supports ARH Haemophilia School 2025 and releases Romanian translation of EHC Booklet on Women with Haemophilia

EHC proudly supported the Romanian Haemophilia Association at their Haemophilia School 2025, where the EHC Women and Bleeding Disorders Committee also made a special presentation launching the Romanian translation of the EHC “Is haemophilia (fe)male?” Booklet.

Awareness

EHC Von Willebrand Disease Awareness Day 2025: Making The Invisible Visible

For the third consecutive year, the EHC leads the campaign for European VWD Awareness Day on February 1, bringing attention to the challenges faced by patients with VWD. This year’s theme is “Making the invisible visible”.