New EHC Children’s Book Now Available to Help Explain Von Willebrand Disease

The EHC has released a new children’s book, Emma and the Playhouse, designed to help children affected by von Willebrand Disease (VWD) explain their condition to family, friends, and teachers. The book is now available for download on the EHC Community website.

Written by Cathy Verbraeken and illustrated by Mariana Ostanik, with guidance from the EHC VWD Committee, the book serves a dual purpose: supporting children with VWD in sharing their experiences and helping children without the condition develop understanding and compassion for their peers.

The hard copy of the book was officially launched at the EHC VWD Summit in Riga, Latvia, in September 2025. It is now accessible in three formats: a stapled softcover brochure, a hardcover glued edition, and an ebook. Both printed editions can be downloaded through the EHC Community website.

Hardcover book: download the interior design and cover
Softcover brochure: download the interior design and cover
Ebook: please contact [email protected] to request it

EHC National Member Organisations (NMOs) are encouraged to translate the book into their local languages to make it accessible to their communities. Financial support for translation and printing is available through the EHC activity grant scheme, and the EHC can assist with design layout for translated editions.

For inquiries regarding use, reproduction, translation, or redistribution of the publication, please contact [email protected].

See similar articles

View more articles

Awareness

EHC shines a light on extremely rare bleeding disorders to mark Rare Disease Day 2025

Our European Rare & Inhibitor Network invites you to join us in marking Rare Disease Day, a moment to raise awareness for the community of patients with extremely rare bleeding disorders, many of whom still struggle to receive a proper diagnosis or the treatment they need.

News

APH Women’s Conference Shines Spotlight on Coagulopathies in Women

Earlier this month, our Portuguese National Member Organisation hosted its biannual Women’s Conference, bringing together 25 participants for an engaging weekend dedicated to congenital coagulopathies in women.

News

The EHC Von Willebrand Disease Committee calls for a volunteer

The EHC announces the call opening for one volunteer from its NMOs to join the Von Willebrand Disease (VWD) Committee until the end of the current mandate (end of 2026).