Following our special Rare Disease Day 2025 Webinar, we warmly invite the bleeding disorders community to join the follow-up EHC European Rare and Inhibitor Network (ERIN) Webinar on Addressing the Needs of People with Extremely Rare Bleeding Disorders. This session will build on the peer-to-peer exchange from the first webinar by bringing together both patients and healthcare professionals (HCPs) to explore shared challenges and solutions.
Organised in collaboration with EAHAD, a European multi-disciplinary association of healthcare professionals (HCPs) who provide care for individuals with haemophilia and other bleeding disorders, this webinar continues our commitment to fostering dialogue and understanding between HCPs and the patient community.
The online event will take place on Tuesday, 10 June 2025, at 18:00 CEST (dial-in details will be sent to registered participants one day in advance).
Featured Speakers:
- Dr Saskia Schols – Internist-Haematologist, Radboudumc, The Netherlands
- Helen Tate – Patient Representative
- Christina Vösl – Patient Representative
This session will feature personal insights and expert perspectives, followed by an interactive Q&A session and open discussion.
Whether you’re a clinician, patient, caregiver, or advocate – your participation enriches this vital exchange.
