Mental health is crucial for patients living with bleeding disorders as it significantly impacts their overall well-being and ability to manage their condition. Good mental health can help them cope with the stress, anxiety, and potential social isolation associated with their disorder, leading to better treatment adherence and improved quality of life. Addressing mental health is essential for holistic care and optimal health outcomes.

About the Mental Health Working Group

The EHC Mental Health Working Group (MH WG) was established in March 2025, with its primary focus being the development and implementation of the mental health survey to assess the needs of the bleeding disorders community. The group will also contribute to the EHC Round Table on Mental Health, bringing together experts, advocates, and patients to discuss challenges, raise awareness, and promote solutions.

To get involved or learn more about the MH WG, please contact Zita Gacser, Community and Projects Lead.