EHC is currently seeking up to three volunteers to join the European Rare and Inhibitor Network (ERIN) Committee until the end of its current term in February 2026.
The EHC is currently looking for:
- Up to two persons with extremely rare bleeding disorders,
- One multidisciplinary care professional (e.g., haematologist, physiotherapist, psychosocial
specialist, nurse, dental care specialist).
The ideal candidate will:
- Be a member of or have a strong professional link with one of the EHC National Member Organisations (NMO);
- Be fluent in English;
- Committed to dedicating sufficient time to fulfil the activities required by the group, including on short notice and with a tight deadline. The estimated time needed is one hour per week, plus one 1-hour online meeting per month, plus one face-to-face meeting per year in combination with a Conference;
- Have experience at either national or international level in carrying out activities and representing people with inhibitors and extremely rare bleeding disorders in the bleeding disorder community.
To apply for this position, candidates will need to send:
- The candidate’s CV, outlining in particular relevant experience such as volunteering;
- A motivation letter outlining briefly their background and why they are interested in joining the ERIN Committee;
- For patient representatives, a letter of recommendation from the NMO President outlining why they believe the candidate would make a great addition to the ERIN Committee.
Download the ERIN Committee call to get more information about the application process. Please send your applications to Stefan Radovanovic, EHC Patient Engagement and Community Lead, at [email protected] by 11 April 2025.