The EHC Women and Bleeding Disorders (WBD) Committee held a strategic retreat on 26-27 October 2024, at the EHC premises in Brussels, Belgium

For the third consecutive year, the Association française des hémophiles (AFH) is eligible for the Ultra-Trail du Mont-Blanc (UTMB) charity bibs.

With great sadness, we learned of the passing of Jess McLean (Page), much-loved Youth Ambassador of the Haemophilia Society, our UK National Member Organisation.

Between August and September 2024 the Asociația Română de Hemofilie (ARH) organised a series of events in Romania that demonstrates the critical role that education, community support, and advocacy play in improving the lives of people with bleeding disorders.

Discover the informational material created by Förbundet Blödarsjuka i Sverige, our Swedish NMO

In October 2024, President Miguel Crato, CEO Olivia Romero Lux, and Education & Communication Manager Daria Camilli visited Istanbul to engage with healthcare professionals and patients about the state of bleeding disorder care in Türkiye.

Don’t miss the chance to participate in the next  EHC NMO Lottery that will be held at the EHC Conference 2024 in Sofia, Bulgaria, from 4 to 6 October.

Unlike past challenges, we’re all in this together. The goal? To collectively cover 1000 km — half the distance from Brussels to Sofia — in just two weeks leading up to the EHC Annual Conference to be held from 4-6 October in Sofia, Bulgaria. Every small effort can lead to big impacts, and individual contributions, when combined, make a big difference!

The EHC announces the call opening for one volunteer from its NMOs to join the Von Willebrand Disease (VWD) Committee until the end of the current mandate (end of 2026).