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In memory of Jess McLean (Page): a courageous advocate from the UK
With great sadness, we learned of the passing of Jess McLean (Page), much-loved Youth Ambassador of the Haemophilia Society, our UK National Member Organisation.
Awareness
A fall season full of events for our Romanian NMO: learn more about their latest activities
Between August and September 2024 the Asociația Română de Hemofilie (ARH) organised a series of events in Romania that demonstrates the critical role that education, community support, and advocacy play in improving the lives of people with bleeding disorders.
Discover the informational material created by our Swedish NMO
Discover the informational material created by Förbundet Blödarsjuka i Sverige, our Swedish NMO
EHC delegation visits Istanbul for its second NMO visit in 2024
In October 2024, President Miguel Crato, CEO Olivia Romero Lux, and Education & Communication Manager Daria Camilli visited Istanbul to engage with healthcare professionals and patients about the state of bleeding disorder care in Türkiye.
Take your chance on the next EHC NMO Lottery at the #EHC2024!
Don’t miss the chance to participate in the next EHC NMO Lottery that will be held at the EHC Conference 2024 in Sofia, Bulgaria, from 4 to 6 October.
Join the next #ThisWay Autumn Challenge leading up to the EHC Conference 2024
Unlike past challenges, we’re all in this together. The goal? To collectively cover 1000 km — half the distance from Brussels to Sofia — in just two weeks leading up to the EHC Annual Conference to be held from 4-6 October in Sofia, Bulgaria. Every small effort can lead to big impacts, and individual contributions, when combined, make a big difference!
The EHC Von Willebrand Disease Committee calls for a volunteer
The EHC announces the call opening for one volunteer from its NMOs to join the Von Willebrand Disease (VWD) Committee until the end of the current mandate (end of 2026).
Stories
A #ThisWay Story: Camilla Wensing
In the framework of our #ThisWay campaign, the EHC interviewed Camilla Wensing, a caregiver from Switzerland/Sweden and CEO of the Swiss Haemophilia Society, who shared with us her journey raising her son Enea, who is a patient with severe haemophilia B with a high-responding inhibitor.
EHC visits the Bosnian and Herzegovinian bleeding disorders community
In July 2024, the EHC was on its first country visit under Miguel Crato’s presidency mandate. The EHC joined forces with the WFH, and paid a visit to its Bosnian and Herzegovinian NMO to assess the situation for patients with bleeding disorders and caregivers in the country and discuss with decision-makers ways to improve care and quality of life for all.
