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Stories
A #ThisWay Story: Adam Trojańczyk
In the framework of our #ThisWay Campaign, the EHC interviewed Adam Trojańczyk (39) from Poland. Living with severe haemophilia B since birth, Adam has overcome significant physical challenges and hospitalisations through determination, discipline, and a focus on personal development, ultimately becoming a successful CEO and an advocate for others facing similar obstacles.
Projects
EHC and ERN-EuroBloodNet “Topic on Focus: von Willebrand Disease (VWD)”
EHC is proud to announce the launch of its collaborative educational project together with the ERN-EuroBloodNet “Topic on Focus: von Willebrand Disease (VWD)” for patients, patient organisations, and healthcare professionals.
Awareness
VWD Awareness Day 2024
We are happy to celebrate together with all our community European Von Willebrand Disease (VWD) Awareness Day 2024!
A #ThisWay Story: Annabel Kattai
In the framework of our #ThisWay Campaign, the EHC interviewed Annabel Kattai (23) from Estonia, a patient with von Willebrand Disease, who shared with us how she overcame her struggles around sports and injections, and how she looks after her mental and physical health.
A #ThisWay Story: William McKeown
In the framework of our #ThisWay campaign, the EHC interviewed William McKeown (32) from the United Kingdom, a patient with severe haemophilia A, who shared with us how he improved his mental and physical health and built sustainable healthy habits by changing his mindset and getting involved with patient communities.
A #ThisWay Story: Scott McLean
In the framework of our #ThisWay campaign, the EHC interviewed Scott McLean (31) from the United Kingdom, a patient with severe haemophilia A, who shared with us how haemophilia impacted his mental health, how he went from denial to acceptance, and how you as a patient can also look after your mental health.
A #ThisWay Story: Ross Bennett
In the framework of our #ThisWay campaign, the EHC interviewed Ross Bennett (25) from the United Kingdom, a patient with severe haemophilia B, who shared with us how he overcame his struggles around sports, how he managed to stay physically active, despite all the injuries and bleeds he suffered throughout the years, and plenty of actionable steps you as a patient can take to improve your physical health.
VWD Awareness Day 2023
We are happy to celebrate together with all our community the first-ever European VWD Awareness Day!