Patients and members of the EHC community shared their experiences navigating dental care with bleeding disorders. Their stories reveal a healthcare system that too often fails to meet their needs, but also point the way toward solutions.

Our German National Member Organisation is inviting youth from other NMOs to join their sailing trip on a Dutch lake from 29 March to 3 April 2026.

As part of the #ThisWay campaign, EHC interviewed Nir Sharon, a person with severe haemophilia A from Israel. He shared how he went from being a tennis coach to living with pain in every step, and how changing his mindset helped him start moving again.

Through raising awareness and encouraging sustainable behavioural changes, the #ThisWay campaign aims to support healthier lifestyles for people with bleeding disorders, their families, and caregivers.

The EHC VWD Committee is proud to announce the release of its “NMO Handbook: A Comprehensive Guide to von Willebrand Disease (VWD)”.

The EHC’s new book, created to help children with von Willebrand Disease explain their condition to those around them, has inspired a colouring page that young artists can bring to life with their own creativity.

In the framework of our #ThisWay Campaign, the EHC interviewed Gertu Saaretalu, a severe haemophilia A patient from Estonia. She shared her journey from a late diagnosis to building resilience, finding her own coping strategies.

From 21 to 23 November 2025, Sesimbra, Lisboa, hosted the 11th edition of the Associação Portuguesa de Hemofilia e de outras Coagulopatias Congénitas (APH) National Haemophilia Congress.

The EHC has opened new calls for volunteers for its Mental Health Working Group, Women and Bleeding Disorders Committee, and European Rare and Inhibitor Network Committee. Deadline for applications: 4 January 2026.